MG Connect Global

MG Connect is an application developed to support generalised Myasthenia Gravis (gMG) patients track their symptoms over time between HCP visits.  Features include:  - Learning more About MG - Fill in the MG-ADL, a clinically validated questionnaire, to communicate the severity of Myasthenia Gravis (MG) symptoms experienced between HCP visits. - View your historic MG-ADL Scores on an easy-to-read dashboard.  The MG-ADL questionnaire evaluates the ability of MG patients to complete basic daily activities such as speaking, combing hair, or rising from a chair, based on their relative weakness in bulbar, respiratory, limb, and ocular muscle groups. The application will store the results submitted over time and display a dashboard with your past MG-ADL scores that can be exported as a PDF to share with your HCP at your next visit. See note below for more information on the MG-ADL Dashboard. All data is stored on the user’s device, and will not be shared with the creators of the app. See the full Privacy Notice below for more information. ---- Note on the MG-ADL Dashboard: The information on the dashboard does not replace a healthcare provider's judgment or clinical diagnosis. The MG-ADL score shown in this app is a self-reported tool designed to help you track your symptoms over time. A higher score may reflect increased symptom burden, but it does not necessarily mean your condition is worsening. Please do not interpret this score on your own. Always consult your healthcare provider to understand what your score means in the context of your overall health. If you have concerns, contact your doctor for guidance. Privacy Notice: This application, MG Connect, has been developed and commissioned by Alexion, AstraZeneca Rare Disease (“Alexion”, “AstraZeneca”, “We”, “Us”).  The purpose of this application is to support people living with generalized myasthenia gravis (gMG) by offering educational content about the condition, enabling daily completion of the validated MG-ADL questionnaire, and providing a simple, unified way to view and share historical MG-ADL scores and responses with a health care professional (HCP). The MG-ADL questionnaire is a validated tool used in standard of care by HCPs which is essential for the management of patients with gMG, assessing changes in symptoms and how these impact the patient’s daily activities. gMG symptoms can vary from day to day. Knowing how they affect the patient’s ability to perform activities of daily living and the doctor can ensure that you receive the best care possible. The application will collect the following personal data from the user: full name, age, phone number, and gender. The application will also collect details about health condition through the MG-ADL Survey to enable the functionality to track symptoms over time and generate historic MG-ADL responses and score for HCP review. Such information will be provided by the user, can be adjusted at any time, and will not be processed or stored by us. All personal and health information supplied by the user through this application will not be stored on any server, only on the user's device. The only information we will receive will be on usage metrics, including referral codes and how many reports are generated at an aggregate level, to report on adoption of the application. If the user uninstalls the application, all information submitted through the application, including MG-ADL submissions and personal information, will be deleted from the user’s device. For any questions or concerns related to privacy and your data, please reach out to us at [email protected]. For your country's full privacy policy, please reference inside the application.